Programs & Services

Consumer Services

• Camp 
• HFI Financial Assistance Program
• State of Illinois Hemophilia Program - assistance (information, bi-lingual application)                        Illinois Hemophilia Program Contact: Kathy Prunty 1-217-782-3303 or Kathleen.Prunty@illinois.gov
• MedicAlert
• Other Finance and Reimbursement Resource Summary     
• Peer group facilitation efforts for Young Families, Teens, Women Men and Hispanic/Latino groups
• Scholarship information, click for more information.

Advocacy                                        

• Ryan White Care Act HIV Case Management & AIDS Medicaid Waiver Home Svcs.
• Lead efforts to develop and facilitate legislative and administrative advocacy needs
• Support continued access to medical product and services by building collaborative relationships with bleeding disorder providers. 

• Liaison between state and national legislators

• Intervention on behalf of individuals (i.e. insurance, schools, employers)

• Collaboration with other health care organizations

Research

• Contribution to National Hemophilia Foundation research fund aimed at a cure for hemophilia

Education

• FactorNet Newsletter
• Information Library
• Health Insurance: Individual, family and financial/health insurance counseling  
• Consumer/Family Information
• Consumer/Family Educational Events
• Presentations to schools, health fairs and community groups
• Liaison with community based organizations 
• Translation services - Spanish / English